Zephyr Foundation Print E-mail
  
Friday, 25 April 2008 12:59

The Organization for Long-Term Non-Progressors (LTNPs) of HIV 

As researchers around the world strive toward a therapeutic vaccine with which to curb the AIDS pandemic, they begin to focus on a small but growing band of people who test positive for the Human Immuno-Deficiency Virus (HIV). Their views, and their clinical studies, reveal that these rare individuals may hold a possible key to unlock the mystery of AIDS. This growing band of individuals is called 'Long-Term Non-Progressors' (LTNPs) and HIV Controllers (HCs). As of June 2010, 1725 of these individuals have been identified and volunteer to participate in clinical research studies throughout the world.

The Zephyr Foundation was inspired by Loreen Willenberg, a California woman diagnosed with HIV in 1992. Designated an 'Elite Controller ' of HIV in 2004 by Dr. Bruce Walker of Partners AIDS Research Group (now called the Ragon Institute - Boston, Massachusetts), Loreen recognized an emerging need to disseminate information about the studies to the affected community,  and to offer support services to those individuals wishing to participate in them. She is grateful for the continued encouragement from family, friends, her 'cousins of control' and many supporters to establish the Zephyr Foundation as a formal non-profit  entity, a goal achieved in August 2010. Our mission, broadly defined, is:

  1. Foster community between all HIV Controllers and Long-Term Nonprogressors;
  2. Assist scientific investigators in their search for members of these communities;
  3. Augment expenses related to participation in the studies; and
  4. Maintain the topic of HIV Controllers and Long-Term Nonprogressors in the public view.

 In 2006, Dr. Walker created the 'International HIV Controllers Study', a collaboration of research institutions, medical providers and individuals dedicated  to the discovery of the mechanisms of control exhibited by this unique group. Information about the study can be accessed on the HIV Controllers Study website.

Please feel free to contact us for additional information or with any questions you might have.
Del.icio.us     Digg This!     Facebook     Google     Reddit     Stumble It!
Last Updated ( Wednesday, 12 January 2011 22:43 )
 

Please Donate!

Please make a tax deductible donation to Zephyr LTNP Foundation, a 501(c)(3) entity via Paypal. No Paypal account required.
 

CROI 2011

  • Wednesday 9th March 2011
    This is our final bulletin from CROI 2011. We hope you have found our news coverage useful. You can find all our coverage at www.aidsmap.com/croi2011, including the news reports and bulletins.We are always looking for ways of improving and developing our resources – so if you have any comments that you would like
  • Thursday 3rd March 2011
    There is increasing evidence of the transmission of HIV strains with resistance to anti-HIV drugs in low- and middle-income countries. Research in eleven sub-Saharan African countries showed that the chances of detecting transmitted resistance increased by over a third each year that a country had been scaling up HIV treatment. A separate study involving people recently diagnosed
  • Wednesday 2nd March 2011
    A new type of anti-HIV drug that targets the first step in HIV’s entry into cells has done well in a Phase IIa study. Currently known as BMS-663068, the drug was shown to be safe and to work against the virus. HIV cell entry is a three-step process. The virus must first attach to the

Follow Us

  • Facebook Page: zephyrfoundation.org
  • Twitter: zephyrfound
  • YouTube: zephyrfoundation

Controllers in Study

 Donation Thermometer
 Donation Thermometer
 Donation Thermometer
86%

Our Goal:
2000
Currently:
1725
Updated:
December 30, 2009

Current Breakdown: 505 Elite Controllers 1009 Viremic Controllers 211 Other